I've realized over this last year that everything seems to be word of mouth in the ASD community. It's a shame that you are thrown off a cliff at diagnosis. The only reason we found out about HBOT for autism was b/c we go to events and chat with other parents. We stood in line for sensitive santa for 3 hours and talked all about it. (BTW, SS was so NOT WORTH IT. It was at Westshore Mall and totally disorganized. It's better to wait the normal 20-30 mins for the amazing Santa at I Plaza.) Two days later, we called the center and were booked for January. That's how fast it happened.
Any-who, I decided to start an online support group and I named it VENT (Varying Exceptionalities Network of Tampa). Honestly, we have people signing up from all over, so you don't have to be from Tampa or from the USA. This is a place where you can go to vent about your crappy day, shout out one of your kiddo's milestones, discuss therapies/treatments, extracurriculars, sell things you are no longer using for PT, OT or Speech, etc etc. It's a private group, so message me if you'd like to join. It's neat to hear what treatments are working for other families. especially from over seas.
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