Wednesday, June 15, 2011

Progress

just a few words that they've been saying lately...

little man: sea lion (he yelled this out when he saw them at Sea World last wkend), dolphin, shark, dog, cat, a noceros (Rhinoceros), elephant, food, milk, red, blue, yawoah, green, orange, tons of numbers, fish, turtle, cookie, anana(banana), nemo, oink (when he sees a pig in his books) and Mama (((sigh))). He finally said Mama for the first time (again) about 2 wks ago.

peanut: all the colors & numbers, what, thank you much Mama, Momo (Nemo), sharka, dolphie (dolphin), car, bird, milk, fur (bread, but she signs bread perfectly), yum, coco (cookie), come sit down, welcome(your welcome), follow me, color, cracker, and many more little things are popping up.  YAY for PROGRESS!

Friday, June 3, 2011

V.E.N.T

I've realized over this last year that everything seems to be word of mouth in the ASD community.  It's a shame that you are thrown off a cliff at diagnosis.   The only reason we found out about HBOT for autism was b/c we go to events and chat with other parents.  We stood in line for sensitive santa for 3 hours and talked all about it.  (BTW, SS was so NOT WORTH IT.  It was at Westshore Mall and totally disorganized. It's better to wait the normal 20-30 mins for the amazing Santa at I Plaza.)  Two days later, we called the center and were booked for January.  That's how fast it happened.

Any-who, I decided to start an online support group and I named it VENT (Varying Exceptionalities Network of Tampa).  Honestly, we have people signing up from all over, so you don't have to be from Tampa or from the USA.  This is a place where you can go to vent about your crappy day, shout out one of your kiddo's milestones, discuss therapies/treatments, extracurriculars, sell things you are no longer using for PT, OT or Speech, etc etc.  It's a private group, so message me if you'd like to join. It's neat to hear what treatments are working for other families. especially from over seas.

HBOT update

I told you that I'd try and post an update here and there, so here it goes...

Both have been sleeping at least 12 hours EVERY night!  The kids took a couple days to get used to it again and now they are DIVING into the machine, yelling for us to come in.  :)  We are so glad it only took 2 days to get in the groove again.  I always tell people that you need to give it a few weeks when you start.  Most of the kids at the center we were at took a LONG time to get used to it, but that was also a noisier place.  We have moved ours into a spare bedroom that's quiet and cool.

B is saying a lot more words and is even partially spelling a few, esp. "ELEPHANT"!

E is also talking more.  Yesterday she asked for a magazine while potty training!  :)  Speaking of potty training, she is remaining dry all day and is hardly wet when she wakes from 12 hours!

Woo Hoo for less diapies!